FPIES Positive

Yesterday we went to see a specialist and had an allergy work up done. As expected Landon did not show a reaction to anything he was tested for, even rice which we know makes him ill. So between the specialist and Landon's pediatrician, he has been diagnosed with FPIES.
What does this mean? I wish I knew. I do know that the anxiety I have over giving my baby any food is tremendous! This is going to be a "trial and error" process and we just have to introduce him to food extremely slowly. Fortunately most cases outgrow this condition by the time they are three years old, and some times even sooner. In the mean time I have to be so cautious with what goes in my baby's mouth, read the ingredients listed on packages and keep an ever so watchful eye on my baby.
Although not ideal, I know there are hundreds of families that deal with this and they get through it, just like we will.

My hope is that more people become more aware of FPIES and what the signs and symptoms are. With how severe and serious the reactions are, I can't believe it is not more well known.

I will keep you up to date on what Landon eventually eats and how we go about it. For now he's just going to continue nursing as I know for sure he's safe with that!

I do have two very cool things to share! I will post on them this weekend!